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After Facing Worst of Healthcare System, I Still Oppose ObamaCare

Posted on July 7 2010 10:15 pm
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By John Nolte

Some call it the suicide disease.

No one really knows for sure what causes trigeminal neuralgia (TN) and as of now there is no cure. Like many disorders of the human nervous system it remains in many ways a baffling mystery even to the best doctors and specialists, and one that’s difficult to diagnose and even more difficult to treat. On the right and left side of your face is what’s called the trigeminal nerve because it breaks off into three different parts eventually landing right above the eye, the upper cheek and along the jaw line. Something, for lack of a better word, inflames this nerve and the result is a searing, burning, electric shock-like pain that can come at any time and last for a few seconds, a few minutes, a few days…

It’s called the suicide disease because there’s no escaping from the pain. For some, various levels of relief can be found through pain medications. Enough relief that you’re willing to live with all the ugly side-effects that come from ingesting such things. But nothing will ever completely mask the pain — a pain you never get used to and that slowly drains away your life-force.

My wife doesn’t have TN, she has something rarer still: Atypical TN (ATN). For sufferers of this nightmare the pain doesn’t come and go – the pain never-ever goes away. Four years ago and from out of nowhere it struck and ever since – 24 hours a day, 7 days a week – there’s been no relief and no good days; only bad days and awful days – days where she can tolerate it and terrible days when the flare ups come which frequently results in a trip to the emergency room.

And then there’s the despair. No one can comprehend what that word really means to sufferers of this awful disease. Imagine the moment when one realizes that the only promise of their future is that they will forever be in inescapable pain. I can’t imagine it. But what I do know is what it’s like to helplessly stand by as the person you love most in the world suffers unimaginably. And after four years of waging war against this thing, I also know a little about what the American health care system is like.

Read the rest of this important post at Big Government

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