Thank you! Your experience really hits home, and may help my son in his quest to understand how to deal with his feelings….I hope you don’t mind if I pass it onto him.

You said, “My life was my own fight to prove that I’m like everybody else and my disability is just “a statistics maker” so I pretended that my disability isn’t here – until next hospitalization”……How true!
It’s an emotional experience, especially for the child who has a seizure disorder & those who feel helpless to do anything about it…
When it happens in a group of children, not only can it be dangerous, but embarrassing…When he was younger, his peers seemed more able to “deal” with it, and more sympathetic. The older he gets, the more he’s had to understand the social implications of his condition, and although it’s now controlled with the right medication, it wasn’t always so. Some of his “so-called-friends” who were witness to it in elementry school, have carried the gossip onto college….
His neurologist has recommended he start counseling, and so he’s agreed to give it a go…I do talk to him about it, and can’t imagine how he would feel if he had no one to understand what he’s going thru. He also worries about passing it onto his children, as his grandmother had it, too. They just didn’t know what to do with it medically in her day and so with modern medicine it’s a matter of finding what works best for each individual. It can sometimes take years to find the right Rx to control it, and as a child grows, the doses have to be continually adjusted and monitored….Traditional school is a “no-can-do” for most children…and home school leaves a child with limited social interaction.
When my son graduated from on-line high school, it was the best day of his life…..especially when the school named him student of the year! What a surprise, and what balancing act-!

As it stands now, I encourage my son to remain flexible, and not let his/our hearts harden because of anyone or anything…..He’s taken up a new sport, and is trying to meet new people thru this…he continues to teach me that with the Lord, all things are possible!

Again, thanks for you understanding …From my experieces, I’ve learned that life is a series of lessons God would have me learn…and most importantly, it’s what’s in our hearts that matter most
I am anxious to read David H. book, to gain better insight from a father’s and girl/woman’s perspective……
Blessings to You….I wish you only the best in life.

As a teenager I had two friends – but most of the times they were busy with their lives and I was too shy to bother others with my inner problems (additionally to the fact that my parents chose not to talk to me about this). All my life was my own fight to prove that I’m like everybody else and my disability is just “a statistics maker” so I pretended that my disability isn’t here – until next hospitalization (which were plenty).

Colette, I hope your son will find a friend. There are good people in this world – but many of those people are quiet so it’s hard to recognize sometimes their wonderful qualities. If they don’t befriend him it doesn’t mean they don’t want to. I’m pretty sure some of them just don’t know HOW. This politically correct culture turned people into cowards of the human relationships (“what if I hurt his feelings?”). Don’t give up.
Elana.

The posts on your children are so tender, full of love, I hope they inspire readers to look outside and inside themselves for the goodness and hope that you both have captured in your words.